Weekly Update #4...Better Late than Never

Not a whole lot has changed in the last week with Owen, which is why I'm not blogging on my typical Wednesday afternoon. He is still struggling through this "bad period" of seizures and lethargy. Hopefully he will begin having better days soon. He has been falling asleep at school, which Gavin thinks is hilarious and I have no clue why. Whenever I tell Gavin, "Well, Owen fell asleep again at school today," he just chuckles like Owen is being that naughty kid in class getting away with something he shouldn't be doing. Oh, Gavin.

We are still in the process of getting an appointment scheduled with Owen's geneticist . They are backed up at least four months and are COMPLETELY dragging their feet with getting back to me...do you see a theme in my blog posts by any chance? We have a list of pressing questions to ask her now that we basically have a concrete diagnosis, for example:
1) Are the odds of passing it down to a child less due to Gavin only being a silent carrier not displaying any symptoms?
2) Does Dex have the gene mutation? Could he pass it down to his children as well if he's only a silent carrier?
These are the two most important questions we need to thoroughly discuss, among others, along with getting Dex tested for the mutation. We now realize that we probably took a HUGE gamble by having another baby without fully knowing the situation behind Owen's issues. Yes, we did understand the risks going into Dex's pregnancy; however, we ultimately decided that we would rather have another amazing child like Owen than not have any other children at all, even if it would be extremely difficult having two kids with special needs. After losing Halle and then bombarded with the problems Owen was facing, Gavin and I needed to know we could do this bearing a child thing without a hitch; we were consumed with sadness and grief. Now almost three years later, were we ever so lucky to get our little Dex, our little fireball!!! He is just perfect and we are so lucky to have him, and Owen and Halle, as our children, no matter the circumstance.