Weekly Update #3

Well, how do I start...one of the unfortunate characteristics of Owen's condition (so far) that we encounter is what seems like a rollercoaster of good and bad weeks. This sadly enough was one of those bad weeks; not the worst we've gone through, but not the best either. Owen is seemingly getting what his little brother has--gunk with a fever and sore throat. What a "normal" child would experience--the sore throat, coughing, etc.--completely turns Owen's world upside down. He won't eat or drink well, he has more seizures, he is awake at all hours of the night, and cries often as if he is in a great deal of pain. However, the number of seizures is still not exceeding what he was having a couple of months ago, so we're still extremely excited about this improvement. Last but not least, Owen has been on a supplement called carnitine and MCT oil for pretty much a week (these two are supposed to help the ketogenic diet work better); we haven't seen much of a change, but the other factors such as his sore throat and fever he had on Sunday could be playing a role in the lack of change. It also takes a few weeks to completely see what effect the medicine is going to have on Owen's seizures. Until next week....thanks for reading!

Random note: my aunt Geralyn emailed me these pictures of two raffle prizes her mother-in-law personally knitted for Owen's benefit. Awesome!