I took Owen on a one-day, whirlwind trip to KC. We were there for a whopping four hours. We met Dr. Seeley, Owen's new neurologist. I wasn't expecting much from the appointment, other than sharing Owen's medical history with him and discussing a game plan for the next few months. I got a really good vibe from him. He listened to me and respected my opinion. He is open to the possibility of trying medical cannabis in the future. We, together, decided to try topamax for a second time to try to help decrease Owen's seizure activity. Since Owen has tried every possible pharmaceutical medication he would prescribe, we concluded that trying one we haven't tried since Owen was two years old might be an appropriate next step.
So far, the topamax is not working well. However, I need to give it a couple weeks. It seems to be making him extremely constipated again, and his seizure activity is elevated. It's difficult to be patient with these medications!
So glad you're having a better experience with this new doctor. We have struggled to find a neuro that we appreciate as well. Sadly, we've kind of stopped seeing any one on a regular basis since we feel they can't really tell us anything new. Hope this go around with the topamax goes well.
ReplyDeleteSo neat about the ball being thrown to Owen :) Moments like that make a mother want to cry :)