While we're at it, I'll post a little update. Owen has two major events coming up in his life. The first will be a surgery, probably in June. He is getting a VNS chip placed in his chest cavity. This is a one-day surgery and will hopefully decrease (not eliminate) the frequency of seizures. He has a consultation on May 21st with the doctor who will administer the surgery, and at that time we will schedule the surgery for probably 2-3 weeks after that. Let's hope this works even just a little!
The second event that Owen has coming up is a vacation! Gavin, Owen, and I are attending the biennial Dravet Conference in Minneapolis, MN this August. The keynote speaker is Dr. Charlotte Dravet (yes, the namesake of Dravet Spectrum Disorder herself). We will leave on a Wednesday, drop Dex off with Aunt Rachel in Kansas City, and spend the next three days listening to speakers, sharing information with other affected families, and entertaining Owen with a lot of activities geared toward his level. Hopefully we will not only gain knowledge on the disorder but also come back with a plan of action on what to do to get Owen living the best possible life. Sidenote: the conference is held (so I'm told) very close to the Mall of America. Just sayin'.
Until next time....
No comments:
Post a Comment